Making "handicap accessible" camp

We weren't the kind of family to spend a summer vacation pitching tents and cooking over a fire, yet I grew up with a healthy respect for "making camp." Five kids, two parents and an Old English Sheepdog would pour out of two cars and stake our claim to what space we could, divvying up dresser drawers and unrolling bags onto sleeping porch cots. My older sister always claimed the cot nearest the screened-in wall that overlooked the lake; if we knew what was good for us, the rest of us didn't even try. Since youth I was drawn to physical obstacle—I'd wanted the top bunk in the room I'd once shared with my sister—so I chose the cot wedged deep beneath the angled beams. A night during which I escaped whacking my head was a night well-executed.

I'd use these skills when returning to the lake after my ankle fracture and subsequent hospitalization. The day after surgery my departure seemed imminent. Even as I was still hooked up to a variety of bags and machines a social worker stopped by my room to ask if my summer home would allow single floor living for awhile. Thanks to my Lifespan Design Studio friends Doug and Ellen, the answer was yes.

After Dave and I purchased the camp from my parents and determined the best way to save it was to pull most of it down and rebuild, we went back and forth on whether to include a first floor bedroom. It would increase the footprint and the cost, pointed out my eighty-year-old father. "Don't do it for your mother and me," he said. "When we can't do stairs we'll stop coming to the lake." I thought of my grandmother, and the many years my uncle parked her wheelchair on the porch so she could continue to take in the view she so loved. My dad may not want that bedroom, but I did.

Once architect Doug was in on the project, he was all for the downstairs bedroom—so much so that he added a wheelchair-width doorway into the room and another into the downstairs bathroom. Because they embrace the philosophies of universal design, Doug and Ellen encourage the kind of forward thinking that allows people to stay in their homes despite future health challenges. The wall sink I wanted to re-use for reasons of nostalgia, Doug pointed out, would perfectly suit someone approaching the sink in a wheelchair.

I had thanked my dad for his input but told him Dave and I planned to add the downstairs room. "Anyway, you know me—I'll probably use it first, after breaking my leg or something." From then on, no matter where Dave and I slept in the camp, when referring to that room my mother called it "Kathy and Dave's room." It could accommodate my folly, but would never touch her aging.

Six years later, my father now deceased after negotiating the camp stairs until the end of his life, I was facing that exact circumstance. Our foresight made the summer home an even more welcoming environment than my permanent residence in Pennsylvania, a three-floor town home that kept me fit while in full orthopedic health but which now provided an imposing challenge. An added bonus at the camp: my cousin had purchased a classy commode for her aging mother to use while visiting one year and had left it behind "for our use." How we'd grumbled to see it fill up so much of the newfound closet space in our rebuilt camp. It was the first thing I told Dave to set up.

Dave drove home with me strapped into the back seat of our Ford Contour, facing sideways with my leg propped up on a pillow. When we got to the lake Dave pulled onto the lawn so he could deposit me right beside the front porch. He pulled my walker from the trunk, snapped it into the open position, and helped me pull myself from the car.

Now what?

I faced the first of many challenges to come: the step up onto the front porch. I stood there with my walker, the clock ticking—gravity was creating an inferno in my foot—with no clue how to negotiate it.

Now that I've had a bit more experience I think I'd turn the walker around and push down on it while hopping up backwards, but I wasn't feeling like such a monkey that day. The youngster who once loved the obstacle course and scrambling into her cot beneath the lowest beam was now completely stumped by a four-inch step. Through some sort of ugly push-me-pull-you Dave and I got 'er done, but I was already realizing how hard the next few months were going to be. I was so thankful for the design of the camp: bedroom, bathroom, kitchen, porch: everything I'd need, close together on one floor.

As I made my way to the couch on the porch to prop my leg up so I could eat the take-out we'd picked up on the way home, Dave honored my new reality by helping "make camp": one by one, he pulled all the area rugs from my path. Perhaps the opposite of the "red carpet" treatment, but in my new reality, just what the doctor ordered.

How old will you be tomorrow?*

Now that I’m fifty-four-and-a-half I’m starting to feel it, you know?

Younger, that is.

When it comes to aging, not all is equal. If my life were equal to my first husband’s, for example, I would be dead in another 191 days.

That’s sobering. In so many ways I feel I am still awakening to myself—how could all this be over any time soon? There is so much to see and learn and do. And READ!!

If my life were equal to my grandmother’s on the other hand, I’d have a leisurely 15,888 days remaining to accomplish all I’d like. (Excuse me—may I choose this option?) My grandmother traveled with my uncle to Europe in her eighties, and read many a book while rocking in front of the fireplace at our summer home in northern New York. When I project forward to think of myself at that age, I mix in a little Laura Ingalls Wilder so I can still be writing. Why not?—Wilder’s Little House on the Prairie books were published while she was between 65 and 76 years of age.

My grandmother’s life was no picnic. Her physician husband worked long hours and died early, so she raised her four children largely on her own. A series of small strokes left her wheelchair bound and unable to speak for several of her final years. But I never sensed she had left us. She never had that frighteningly blank look I saw on so many faces in the nursing home where I once worked. Even when she couldn’t speak she looked as if she were listening, and wore a sweet smile. (She also smiled while rocking and reading—Harlequin romances.) Thanks to my ever-attentive uncle (pushing her wheelchair in the above picture, which was taken at my wedding to Ron), my grandmother always looked put together, wearing rouge and lipstick and a dress (never once in the thirty years I knew her did I ever see my grandmother wear trousers).

My grandmother died in her sleep on February 13, 1987, at the age of 97. It was a Friday the 13th, and the moon was full. I hope she'd understood when I told her I was pregnant—in a wonderful affirmation of the circle of life, my son Jackson, left, was born on her birthday that year.

So why bother thinking about this? I know I can't control the number of my days here on earth.

But I can allow the days of the people I’ve known to inspire the way I choose to live them.

As to the 191 days: To honor that, by the time I reach Ron’s “deadline,” I aim to finish my memoir. To put the story of that part of my life to rest at a time in my life that corresponds with his decision to end his life. It feels right.

As to the 15,888 days: If I am lucky enough to have a marathon of days still before me, I’d better get in shape. I’ve always been active, and at fifty could walk and run and swim farther than I could in my early twenties. Yet I had belly fat that just wouldn’t budge, putting me at risk for all sorts of physical maladies that could shorten my life, or worse, disable it.

Thanks to fitness tips from my younger brother, who’s a personal trainer, I’m finally losing that weight (more circle of life here: new science has supplanted the fat burning principles I learned in exercise physiology when I got my master’s degree in health and physical education in 1980). My arthritis bothers me less. I’m fitting into clothes I hadn’t worn in over a decade. And whose arms are these? In many ways I'm turning back the clock, and becoming my younger self. Any wisdom accrued is mine to keep.

*I borrowed my title question from the tagline of Lifespan Design Studio, an architecture firm which utilizes universal design to support the comfort and function of people of all ages and abilities in commercial and residential settings. It's run by my friends Doug and Ellen Gallow, who printed the question on the back of the tee-shirt advertising their business. (We've been friends a long time—Doug took this picture of my grandmother.) I guess when they read this they’ll know how I value the question on that tee-shirt. It adds a philosophical punch to my workouts.

So: How old will you be tomorrow?

Signature design

I was weary to the bone from closing up the camp and took a moment to sit and read what my friend had written in the Trout Lake Journal—a fancy name for the spiral notebook my sister designated for this use some quarter-century ago. Now nearing the close of its second volume, the journal has outlived my grandmother, Uncle Bob, Aunt Jane, Ron, several marriages, and the very camp in which it was housed.  I opened to the last entry, where Doug, the architect from Lifespan Design Studio who helped me design the new camp, had laid fresh ink on a musty page.

He referenced how stressful it had been for me as, one decision at a time, I left our old camp behind. Why copy it? he'd ask me. He wouldn't settle for a murky argument like "sentimental attachment." Slowly I came to see his point—that structure had never been designed in the first place, but patched together to meet new needs over a century of use. Envisioning the new camp required mimicking the very process that allowed personal growth after Ron's suicide: I needed to set aside "the way it had always been" and make purposeful new choices. This was not easy. Coping is in my blood, and readily accessible. I find it much harder to access the kind of deep knowing that can turn into a vision.

But that was old news. I was eager to know what it was like for an architect to walk into a building he had designed. Yes, he knew the floor plan, and yes, he had created a black and white sketch of the exterior, but what did it feel like to be surrounded by its 3-D surfaces, in living color? Doug wasn't just my architect; he and I had been friends for 36 years. I knew he wouldn't let me down. I scanned the entry until the following words, so loving in their intent, pulled me up short:

When I walked into the camp I immediately felt at home. I designed the camp for Kathy; it is her. 

I sought the truth in these words as I finished what I used to call "chores" but now regarded as a fitting expression of loving care for this place. I mopped surfaces that are practical and frugal and easy to care for; I'd no sooner spend money on a manicure than furniture wax. The pine paneling is new and strong and displays precious family heirlooms. The interior is open and welcoming, large windows making parts of it almost transparent. While the sleeping porch and open living room/kitchen area encourage togetherness, bedrooms with closing doors create needed boundaries. The kitchen and laundry room encourage optimism; the necessary work of daily living can be a joy. The simple line of rocking chairs on the porch allows the work of a writer—observing, dreaming. The building is protected by materials that compliment the natural setting, and while they may look old, they are plenty strong enough to deflect storms—the numerous pots placed around the old camp to catch the rain are now solely used for cooking. A new bird feeder and flowers in a rotted stump celebrate the surrounding nature.

Fond as I am of extended metaphors, these weren't the thoughts that brought tears to my eyes when I read Doug's entry. It was an immediate association to words I'd uttered time and again since the camp had been rebuilt; words many others unaware of this metaphor had echoed.

It is her, he wrote. Could this really be true? Because this was my gut reaction: It is beautiful.